We took my servilely disabled brother to church farm in june this year they were great with him as my brother has austim and hate being near loads of people it was lovely their and some great dog walks
Meet Rafferty Harbour.. one of our amazing little heroes...
He was diagnosed with an exomphalos (stomach and bowel outside). That was operated on day one of life. He weighed nearly 11lbs and was diagnosed that day with Beckwith Weideman Syndrome (BWS)
He then couldn't breathe properly as his tongue caused him airway issues. He had a nasal airway inserted to keep his airway open, he also wouldn't suck or eat anything due to the size of his tongue so he had an NG Inserted. He developed lots of chest infections and aspiration pneumonia.
He's had his tongue reduced which has helped his eating, breathing etc. He is monitored every 6 weeks for cancer as he's at a much greater risk at getting it, especially in the kidneys.
He's got his next operation in November for urology issues, and they want to operate on his tear ducts as he gets lots of eye infections.